Blog
Voices from the Sector: An Interview with Calaneet Balas, President & CEO, The ALS Association
In this Voices from the Sector interview, Makiyah Moody and Calaneet Balas talk about the significance of the work of the ALS Association, the impact of COVID-19 on access to care, the silver linings that have developed through increased connectivity, and what is on the horizon this upcoming year.
- [2:00] The important work of the ALS Association towards finding a cure for ALS
- [4:02] How COVID-19 is influencing access to care that would normally be available through the ALS Association
- [6:47] The silver lining of medicine and other silver linings that have shone through this time, such as increased participation in support groups and elevated levels of communication and connectivity
- [8:31] The most effective ways of raising funds to find a cure for ALS, recognizing that it is a long game
- [10:12] How the philanthropic sector can better support through less restrictive funding
- [12:55] What is on the horizon for the upcoming year
- [15:11] How the ALS Association is leveraging collaboration and the sharing of resources to ensure efforts towards finding a cure are not duplicated, but enhanced, by working together
- [19:40] A visualization of the legacy that Calaneet would like to leave through her work with the Association
- [21:28] #WeCantWait campaign that speaks to the present and the urgency of anyone living with ALS
It seems to me that we need another big find raising exercise like the IceBucket challenge. It will continue to raise awareness and raise funds at a higher level.